Amy Byer Shainman
Amy Byer Shainman, also known as BRCA Responder, is an advocate, author, and producer who provides support and education surrounding BRCA and other hereditary cancer syndromes. She's the executive producer of the award-winning documentary Pink & Blue: Colors of Hereditary Cancer.
Shainman is a BRCA1 gene mutati.... more
Amy Byer Shainman, also known as BRCA Responder, is an advocate, author, and producer who provides support and education surrounding BRCA and other hereditary cancer syndromes. She's the executive producer of the award-winning documentary Pink & Blue: Colors of Hereditary Cancer.
Shainman is a BRCA1 gene mutation carrier and a "previvor"--meaning she is a survivor of a predisposition to cancer (a previvor is someone at extraordinarily high risk for cancer who has not had the disease). In 2010, she had two prophylactic surgeries to drastically reduce her cancer risk; a nipple sparing, skin-sparing mastectomy with reconstruction and oophorectomy with a hysterectomy.
Shainman has been featured in Cure Magazine, The Jewish Journal, The Palm Beach Post, and numerous live and taped television and radio segments nationwide. As a digital ambassador for the National Society of Genetic Counselors gene pool, she is considered one of fifteen influencers who have unique perspectives and knowledge in the fields of genetics and genetic counseling. She is an administrator for the largest female-only BRCA support group on social media. Shainman has published articles in The American Journal of Managed Care, Jupiter Magazine, and Oncology Nursing News.
Her book Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew has won 14 literary awards and was the December 2020 book club selection of The National Library of Medicine.
Currently, Shainman is producing a scripted feature film highlighting what it's like to be a BRCA positive female at high risk of developing breast and ovarian cancer.