All Mimsy Were The Borogroves: A Family's Struggle with Lewy body dementia
Jennifer Dakan, author
In 2011, at the age of seventy, my mother was diagnosed with mild cognitive impairment and shortly thereafter, Lewy Body Dementia. Lewy Body dementia is hard to explain, hard to comprehend, and hard to witness. Throughout the six years she was consumed by this disease, my mom, who had always been a source of comfort to others, became hard to be with. Her disease made people uncomfortable. She was not at all herself, and also very much herself. I relied on photography, a shared passion between my mom and me, to help me be with her, to see her, and to document a short, relentless period of her life. As the foundation of the home she created was overthrown by her disease, my camera recorded it. After she died in 2017, I began to create a book that would help people understand dementia from all sides. It reveals in texts, recorded conversations, images, and personal reflection, a complex, relentless disease and its impact on all of us.