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Watching Their Dance
“Watching Their Dance offers a compelling glimpse into the lives of an HD family, navigating a world of loss and fear with courage and clarity.” \t\t\t\t\t\t--Kate Miner, Actress and HD Advocate WATCHING THEIR DANCE A MEMOIR Three Sisters, A Genetic Disease, and Marrying into a Family at Risk for Huntington’s Huntington's disease is a devastating inherited condition that produces a combination of neurological, motor, cognitive and psychiatric symptoms. It’s been compared to having Parkinson’s, Alzheimer’s, and ALS all at the same time. There is no cure. Therese Crutcher-Marin’s world was turned upside down when she learned that her fiancé, along with his three sisters, were all at risk for Huntington’s. In her new memoir, Watching Their Dance, Crutcher-Marin shares her deeply personal story of marrying into a family at risk for Huntington’s. “Some lives seem to move smoothly along a natural continuum, with one event or decision seeming to slide into the next,” she writes. “Such people seem to have faced no dramatic forks in the road, had few life-altering choices to make. Other lives, at least in hindsight, travel in a particular direction at one particular life-changing moment. That’s what happened to me, when, at age twenty-two, I suddenly had to confront the most complicated decision of my life.” Crutcher-Marin tells of her soul searching and her fears as she contemplated a life of unpredictability: her fiancé and each of his siblings had a 50-50 chance of developing a fatal wasting disease that had no test, no treatment, and no cure. She shares the great happiness and joy she experienced when she took a leap of faith and married the love of her life, along with the tough choices and pain that became part of her life as one by one her sisters-in-law slowly succumbed to the disease. Watching Their Dance is a truly inspirational story of hope as Crutcher-Marin shares the path she has chosen may be difficult but it has opened her heart to love more deeply and made her life that much richer. Therese Crutcher-Marin is a member of the board of directors of the Northern California Chapter of HDSA. She lives with her husband John in California. “A heart-wrenching tale with HOPE as the key ingredient for survival.” --Jake Dowell, Professional Ice Hockey Player and Huntington’s Disease Advocate 100% of the proceeds from the sale of this book will go to Huntington’s Disease Society of America